I can't believe I have less than a week left. I don't want to leave. Running the women's self expression group, although I had doubts about taking it on, has had a huge impact on me. Though not many women come on a regular basis, I have become very close to those that do. We mostly don't share a language, but we have an amazing translator--a seventeen year old Afghan woman who is simply lovely.
There is one Afghan woman who comes regularly to the group that has an eight year old daughter in a wheelchair. A couple of sessions ago, she talked about her daughter. Nadia used to be able to walk and run and lead a relatively normal childhood. Though she was diagnosed with some sort of degenerative neuro-muscular disease (I'm not certain what, but think muscular dystrophy, multiple sclerosis...) at nine months old, medication kept her disease from progressing quickly. For reasons I don't know, her medication was stopped when she was four years old. Her mother told us that the doctors said she didn't need it anymore, that she'd be okay. However, that was not the case.
At some point, trying to escape the war in Afghanistan, the family moved to Iran, (I have heard this from quite a few of the Afghan refugees, but they are discriminated against in Iran, and sometimes deported--my lovely translator told me it's because the Afghans are mostly Sunni and the Iranians Shi'a).
Nadia's mother told me that the medication was restarted at some point, I'm not sure when, but that she has not received any for two months, here in Greece.
I have written about Nadia before. She is the little girl who used to turn the jumprope so cheerfully and willingly for those who could still run and jump and play. I was shocked a few days ago to see that her disease has progressed rapidly in the time I've been here. She would not be able to turn a jumprope now, even if we still had one. She had to bend her head low to eat a cookie her mother gave her.
In the women's meeting where Nadia's mother talked about her disease, she also told us how difficult it was to give her a shower. Imagine trying to hold up a soapy child who cannot stand on her own. I talked to the IRC (International Rescue Committee) child protection officers on camp about a shower chair but got nowhere. I have talked to them several times about Nadia, but nothing ever happens. So I talked to Project Elea, and yesterday at the women's meeting, we gave Nadia and her mother a shower chair.
It is such a small thing. She really needs to be allowed to go on to Germany or somewhere with excellent medical facilities to get the help she and her family need, but that's not likely to happen. Certainly not anytime soon. In the meantime, her father and mother continue to push her wheelchair across the rocks, jolting her terribly, and try to cope with her growing needs. The burdens of being a refugee are heavy enough without the added weight of a handicap, and there are many. Rashid who has a twisted leg and walks through the dense gravel on crutches, the new family in which both parents are blind, five or six people in wheelchairs, and many with psychological problems. Trauma...
And all of them live in limbo. They don't know if they will be allowed to go on somewhere else--where there might be job opportunities (Greece is so economically depressed there are none here), to join their families elsewhere, or whether they will stay in Greece and try to make a life. One special Iranian woman just got approved for asylum in Greece, although she won't get the final papers for several months at least. She is happy about it because it means an end to limbo, but she has grown daughters in Holland she is not allowed to reunite with, and her schizophrenic brother has head trauma from being beaten by the Greek police at some point.
My translator is here with her father, one sister, and one small brother. Her mother, two more sisters and a brother are in Germany. They don't know yet if they will be allowed to reunite their family, and will not know anything for months to come.
Another young woman has been approved to go on to Germany and leaves next week, but she is being sent alone, without her mother and sisters. She has relatives there, but is afraid to go alone.
Then there is the woman whose husband has Norwegian citizenship. They have two small children together who are also Norwegian citizens. The husband came and lived with his family in the refugee camp for eight months, but had to go back to Norway to work, yet the Norwegian government has decided that their marriage is a marriage of convenience, and have refused to allow her to join him.
One of the women I've become close to in the women's group is a 27 year old that I would have guessed was in her forties, she looks so beaten down. Since I have known her she has tried at least three times to go to Germany with false papers. She is eight months pregnant and desperately wants her baby to be born in Germany. This is her eighth pregnancy. Forced to quit school at eight years old because of the war, she was married at thirteen. Two of her children were killed in the war, and she miscarried one child due to the war. She has three living boys here with her and her husband. I don't know what happened to the other child. She has a shrapnel scar on her cheek. Neither she nor her husband can read, but they are lovely people, kind and generous.
Another woman that comes regularly to the group wanted to be an engineer. She wasn't allowed to study engineering because in Afghanistan women are only allowed to be teachers and doctors, and only so that their will be female teachers and doctors for women. Now she doesn't want to be an engineer anymore; she wants to be a judge and go back to Afghanistan to judge on human and women's rights. She and her husband regularly consider going back to Afghanistan because they have no hope of leaving Greece and there is no work here. Her husband is a medical technician and speaks several languages. He used to translate for some branch of the US government in Afghanistan, but they have not helped. I have met quite a few Afghans who worked for the US but have been cast aside. Of course, anyone who left and went back would be in even more danger because they would be targeted, but those who worked for the US would be even more of a target. I try to discourage them from going back. It isn't safe. She is pregnant and so depressed about it. She doesn't want to bring another child into the hopeless limbo they live in.
Refugees here on their own have almost no hope. One Afghan man told me his story last night. How his boat had to turn back the first time. How it was sinking again the second time, and leaking fuel into the boat, and the Greek coast guard ship that spotted them originally refused to help, telling them to go back. It was on March 19, the day before the EU/Turkey deal went into effect. Ultimately, the Greek coast guard did pick them up. He had chemical burns covering his legs from the fuel and sea water, but if they had turned back and tried later, he would have had even fewer rights because of the EU/Turkey deal. As it is, he, like most, is in limbo, and asked me if he had a future.
I feel so helpless. The problems are so huge and all we can really do is minimally relieve the pain for a moment.
I don't want to leave. It's so ironic that they are all so desperate to leave and can't and I don't want to leave and am forced to.
I worry about them all.